multiple-sclerosis
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I’m sorry ive been a bit absent, this year has been a bit tricky… It actually started in Nov 2023 when I had a mild disagreement with my neuro. I currently take multiple drugs a day for the spasticity in my legs and I had asked if I could try botox or be referred to…
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We recently had to travel back to our home town for my father-in-laws funeral. A stressful enough event; time constraints stress me out which in turn makes my spasticity worse, we had to stay at my Mums as she lives all on one level plus we have the dog, whom we can’t exactly leave in…
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Just when I was beginning to think all my ridiculous shenanigans were coming to an end another mundane task presents an opportunity for my body to fuck me over. Washing is one of the few constants in life (unless you’re a naturist of course!) and that is certainly true in our house. Living on one…
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Not quite what you’re thinking… Contrary to popular opinion, having a condition like Multiple Sclerosis is SO much more than just being in a wheelchair or walking with a cane. I’ll give you a little snippet of my daily life (don’t worry, I won’t drone on): For me those are just a few of my…
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Although this should be titled “Incompetence!” because that’s what I’ve dealt with from start to finish… In the UK there is a scheme known as Shared Ownership, designed to enable people to buy a house they wouldn’t otherwise be able to get a mortgage for. We purchased 60% of the house and subsequently paid rent…
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This past week I took delivery of my new wheelchair, which was quite the surprise. Having ordered in September from Cyclone Mobility I was given a lead time of 35 weeks… that’s 6 bloody months!! Good job I’ve still got the shit one I bought off eBay a couple of years ago. But 35 weeks…
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Weekend before last we went back to Reading for a very good friend’s birthday party and to see some family. We were due to stay with my mum (she has a ground floor maisonette) and I was looking forward to going “out-out” for the first time in forever! The day started well, I got up…
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A week or so ago I was horrified to actually HEAR a beetle fall onto the floor, it was THAT big. Now, I know the UK is very tame when it comes to our insects, very few bite and none of them can kill you so yes, I’m just a wimp. But seriously, this thing…
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My husband has been a motocrosser since he was a kid, it’s in his blood. I’ve been a “motocross wife” since we’ve been a couple, it was quads when we first got together but he went back to two wheels about 5 years ago. An unfortunate accident, not involving him but a member of his…
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Yet another first this past week, jeez I can barely cope with all the excitement. First though, a little background… We live in a new build house, built in 2022, which means it was subject to specific building regulations that stipulate certain things to allow accessibility for wheelchair users. For example, all internal doorways must…
The Sweary MSer 