multiple-sclerosis
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Yet another first this past week, jeez I can barely cope with all the excitement. First though, a little background… We live in a new build house, built in 2022, which means it was subject to specific building regulations that stipulate certain things to allow accessibility for wheelchair users. For example, all internal doorways must…
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Last weekend was a “Bank Holiday” in England meaning we got a whole extra day off – woohoo. What it also means is that the weather is guaranteed to be fucking shite, especially as it’s supposed to be summertime. And it didn’t disappoint. It pissed with rain and blew a gale exactly as expected, but…
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I’m not one of those diligent people that meticulously checks her bank statement every month. Hell I don’t check it EVER. Why would I? So it can tell me I’m skint? Nah, I’ll pass thanks, I don’t need that kind of negativity in my life. However, the downside of living in such blissful ignorance (aside…
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My life seems to be just a series of “firsts” these days. First time I can’t get up the stairs, first time I can’t fill up the car, first time I can’t get off the floor… this time was a bit different, although still very much a “first”. It’s no secret that I can no…
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Last week should have been a fairly uneventful one, I had one measly appointment at the local small hospital for my feet to get measured for some orthotic shoes as my ankles are severely pronated and very painful. That was it. But nothing in my life is that drama-free these days! My appointment was at…
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The practice of aspirational thought with the purpose of making your dreams come true or your aspirations become reality has become evermore popular. Also known as “manifesting“.. now I’m all for a positive mental attitude, I wouldn’t be as well off mentally as I am without one. But given my situation let’s be real, no…
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For the first 5-6 years of my MS “journey” (I hate that word, it’s such a millennial thing to say) I was completely unaffected by the weather. In fact, I found foreign holidays in warm climates helpful in many ways. That all changed when I started Ocrevus, a third line DMT which was sold to…
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(TW: spider image further down) I’ve been sleeping exclusively on the sofa (settee/couch, whatever you call it) for around six months now. I hate it, my husband and I are traditional co-sleepers and neither of us want to sleep separately but until I can move to a bungalow this is how it’s just going to…
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Well, it’s more of a semi actually 🤣 let me explain. The spasticity in my legs make them incredibly hard to bend, despite the multiple drugs I take to relax them. This is exacerbated by fatigue which I suffer with on a moderate basis daily however I haven’t slept well for the last three or…
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I’ve always had pretty vivid dreams, even as a kid. I don’t dream all that often now, probably because the plethora of drugs I take at bedtime send me straight down into deep sleep almost skipping the REM stage altogether! Last night though I did dream, I had a hideous nights sleep, probably totalling 4.5…
The Sweary MSer 