life
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Last weekend was a “Bank Holiday” in England meaning we got a whole extra day off – woohoo. What it also means is that the weather is guaranteed to be fucking shite, especially as it’s supposed to be summertime. And it didn’t disappoint. It pissed with rain and blew a gale exactly as expected, but…
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I’m not one of those diligent people that meticulously checks her bank statement every month. Hell I don’t check it EVER. Why would I? So it can tell me I’m skint? Nah, I’ll pass thanks, I don’t need that kind of negativity in my life. However, the downside of living in such blissful ignorance (aside…
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My life seems to be just a series of “firsts” these days. First time I can’t get up the stairs, first time I can’t fill up the car, first time I can’t get off the floor… this time was a bit different, although still very much a “first”. It’s no secret that I can no…
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For the first 5-6 years of my MS “journey” (I hate that word, it’s such a millennial thing to say) I was completely unaffected by the weather. In fact, I found foreign holidays in warm climates helpful in many ways. That all changed when I started Ocrevus, a third line DMT which was sold to…
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(TW: spider image further down) I’ve been sleeping exclusively on the sofa (settee/couch, whatever you call it) for around six months now. I hate it, my husband and I are traditional co-sleepers and neither of us want to sleep separately but until I can move to a bungalow this is how it’s just going to…
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Well, it’s more of a semi actually 🤣 let me explain. The spasticity in my legs make them incredibly hard to bend, despite the multiple drugs I take to relax them. This is exacerbated by fatigue which I suffer with on a moderate basis daily however I haven’t slept well for the last three or…
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I’ve always had pretty vivid dreams, even as a kid. I don’t dream all that often now, probably because the plethora of drugs I take at bedtime send me straight down into deep sleep almost skipping the REM stage altogether! Last night though I did dream, I had a hideous nights sleep, probably totalling 4.5…
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I 100% consider myself a dog person, we have had dogs since I was baby. They have always been present in our family and when I left home the first 18 months in a rented property without a dog was very very odd. Luckily we had a landlord who was a friend of ours and…
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Neuropathic itching or the “MS Itch” is one of the lesser known symptoms of MS or, more accurately, lesser spoken about as it isn’t considered one of the more debilitating symptoms. But Jesus Christ on a motorbike is it fucking annoying!! Unlike “normal” itchiness caused by a bite or sting or an allergy, neuropathic itching…
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I love a good thunderstorm, I’m always the first to be sitting at the window watching the lightening streaking across the sky. So you can imagine my glee when we actually got a big one at 4am one day/night last week! Initially the rain woke me up hammering against the window with some serious ferocity…
The Sweary MSer 