blog
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Neuropathic itching or the “MS Itch” is one of the lesser known symptoms of MS or, more accurately, lesser spoken about as it isn’t considered one of the more debilitating symptoms. But Jesus Christ on a motorbike is it fucking annoying!! Unlike “normal” itchiness caused by a bite or sting or an allergy, neuropathic itching…
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I love a good thunderstorm, I’m always the first to be sitting at the window watching the lightening streaking across the sky. So you can imagine my glee when we actually got a big one at 4am one day/night last week! Initially the rain woke me up hammering against the window with some serious ferocity…
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Now that I have a car that I can actually drive I’ve been able to get back to my normal appointments. Thank god! So last week I went back to physio (and again yesterday actually) which I enjoy immensely and which is extremely important and good for me. The MS Centre gym has some very…
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So after 5 months and a number of days I finally have a new car!! At last! I placed that order on my birthday, 18th December LAST YEAR and anyone who knows me knows I am NOT a patient person so the poor guy at Peugeot has had to put up with a lot of…
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On account of my reduced/failing mobility I have a lot of things delivered. I’m not happy about it, my carbon footprint is higher than the average but “nipping to the shop” is an almighty ordeal. Plus I have a lot of things on subscription as you get discounts that way – boring things like washing…
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I make no secret of the fact that I really like spending money and I’m actually really good at it too! One of the toxic traits of the UK banking system is that the minute you turn 18 you get letters coming through your door offering you credit cards and I’m too weak to say…
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One of the best resources we have in the UK are MS therapy centres and I have been lucky enough, both when I lived in Reading and now in Westbury, to only be 10 minutes away from my local centre. There are always lots of different therapies on offer ranging from Massage to Reiki to…
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I’m sure my UK readers just sang that 🤣 So I recently tried CBD gummies, I got a small trial bag from Orange County CBD, just 16mg, to try them out. You see, I take baclofen 4x a day and Dantrium morning and night for spasticity but I STILL wake up in the night poker…
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DMT stands for Disease Modifying Therapy or Treatment. Sometimes also referred to as DMD – Disease Modifying Drug. These get offered to MS patients upon diagnosis. The best bit (note the sarcasm) is that your neurologist tells you about them briefly, points you in the direction of the MS Trust’s website where you’ll find tools…
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Am I missing out on life? At the moment 100% yes. I’m in a kind of limbo right now, I won’t have a car for another couple of weeks so my independence remains constricted and that’s been since December! I’m also waiting for a referral to a specialist clinic for the spasticity in my legs…
The Sweary MSer 